In accordance with the
Belgian law of 8 December 1992 on the protection of privacy, the Belgian law of
22 August 2002 on patients' rights and the General Data Protection Regulation
(GDPR) of 25 May 2018, your privacy will be respected and your next of kin will
have access to the personal data collected.
All information collected during the controlled storage of your body material will be pseudonymised (encoded), so that your data can still be linked back to your personal medical file with the correct codes. The key to these codes will be accessible only to the physicians involved who work at the participating departments of neurology and neuropathology. Only the pseudonymised (encoded) data will be used in documentation, reports, education or publications in medical journals or conferences. This means that the confidentiality of your data is always guaranteed. Both your personal data and your health data will be processed and stored for at least 20 years.
Representatives of the sponsor, auditors, the Medical Ethics Committee and the competent authorities, all bound by professional secrecy, will have direct access to your medical records in order to monitor the procedures of this scientific research, without breaching confidentiality. This can only be done within the bounds of the relevant laws. By signing the Informed Consent Form after having taken note of this explanation, you agree to this access.
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