Living donation - prospective sampling

Your carefully stored body material/data is very valuable for future scientific research into the causes of these diseases. In the past, the combination of genetic, neuropathological and neurochemical research has led to important breakthroughs. It is highly likely that increasing knowledge about the mechanisms causing these conditions will eventually lead to new and effective therapies.

You or your family member/legal representative have the right to inquire about the study at any time, via your treating physician.

• Your treating physician will inform you or your legal representative (partner, child) of the possibility of participating in future scientific research by having your body material/data stored in the IBB-NeuroBiobank BB190113.
  
• If you or your legal representative (partner, child) are able to consent to this, a copy of this signed Informed Consent Form will be handed to you or your legal representative.
• Your treating physician will send the original signed document to neurobiobank@uantwerpen.be and will also provide a copy of your neurological clinical file. Both documents will be stored securely in the IBB-NeuroBiobank database with respect for your privacy.
• The treating physician or nurse contacts the IBB-NeuroBiobank by calling the general telephone number: +32 3 265 2688 to schedule the controlled transfer of your body materials/data.
• Your body material/data will be taken to the Born-Bunge Institute, where it will be prepared for preservation and stored in the IBB-NeuroBiobank BB190113 and linked to your previously obtained data. From this moment on, your body material/data will be referred to with a code.
• Your body material may be used at a later date for the benefit of scientific research into neurodegenerative or neuromuscular diseases. For this purpose, a researcher must submit a request to the IBB-NeuroBiobank which stores your body material/data. Each new study is first submitted to a Medical Ethics Committee for approval.